Patients Partnering in Research
Interested in being a patient partner?
Patients who play the role of a research team member and provides input during various steps of a research study. For example, design priorities, gather and analyze data, help distribute and implement research results.
For information on other opportunities, go to our Get Involved section.
For information on how to get involved in a clinical trial, go to It Starts With Me.
Learn more about the Fraser Centre and how you can support your patient-oriented research.
In addition, check out these resources:
- The Patient Voices Network is a great way to find out about various opportunities for patients to get involved.
- BC Health Research Connection project is working on a platform to connect patients and researchers.
- Next time you are offered the consent to contact form, complete it so researchers can find you to participate as a subject in future studies.
- Sign up to receive email updates from the Fraser Centre.
What is patient-oriented research?
It is research that:
- Engages patients as partners (rather than patients as study subjects)
- Focuses on patient-identified priorities
- Is conducted by multidisciplinary teams in partnership with stakeholders
- Aims to apply the knowledge generated to improve health care systems and practices
What do we mean by “patient”?
Patients include individuals with personal experience of the health system including informal caregivers, family and friends, and members of the public.
Note: It is recognized that some groups and individuals prefer terms such as people with lived experience, clients, consumers or community members.
What is patient engagement?
The BC SUPPORT Unit and Fraser Centre has adopted the engagement spectrum from the International Association for Public Participation (IAP2). It means working with patients along a spectrum ranging from consultation, to involvement, to collaboration and empowerment. The goal is to have a meaningful and active partnership with the patients.
Get more information on Strategy for Patient-Oriented Research (SPOR).
Want to learn more about patient-oriented research?
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