At this half day session we will explore the what, why and how of patient engagement. Presenters include patient partners, patient engagement experts and clinician research team members. This session will provide tips, tools and experiential learning for clinicians, researchers, health care professionals and members of the public.
What is patient engagement? We will explore all the situations where patient engagement is used and relevant, such as patient experience, health research, quality improvement, evaluation, and implementation projects. Real life examples of how patient engagement and Patient and Family Centred Care are being operationalized in Fraser Health will be shared.
Why we need to do patient engagement? Our patient partner, Delia Cooper, will share first hand perspectives of her past and present experiences in health care research which will help to answer some of the pressing questions about the reasons why patient partners are needed to improve health research.
How to do patient engagement? Our very own Fraser Health researcher and nurse Sarah Crowe and UBC nursing professor Fuchsia Howard along with their team will demonstrate how they are doing patient engaged research in their multidisciplinary project aimed at examining the healthcare expectations and sources of distress experienced by residents and family members of those living with ventilators in residential care. The team includes two patient partners as part of the research team which has come together with an integrated knowledge translation methodology to ensure the patient and family voice is heard.
About the speakers
Mandy Bellows, Leader, Patient and Family Centred Care
Mandy Bellows moved to Fraser Health from Alberta Health Services in May 2017. She studied at the University of Alberta and completed her Bachelors of Science in Nursing Degree in 2003 and Masters of Science Degree in Health Policy Research in 2015. Mandy has presented provincially, nationally and internationally and has published in multiple academic journals in the area of patient engagement. With an extensive background in quality improvement, Mandy supports teams to operationalize the patient and family centred philosophy. Passionate about person centred care and engagement, Mandy is dedicated to improving the human healthcare experience.
Delia Cooper, Patient Partner
In 2010, Delia Cooper became an active member of the Patient Voices Network in BC and has provided a patient perspective on the care of people with chronic conditions for the Chronic Disease Management Shared Care Advisory Group with Providence Health Care in Vancouver Coastal Health. She has also been a member of Fraser Health Authority’s Patient Advisory Council from 2012-2017 and provided Patient Advisor reviews for FH’s Department of Research Evaluation (2015-2017). She is currently involved with FH’s SPOR and is a Board Member on the BC Academic Health Science Network. Delia has received numerous awards for her volunteer work including the Queen’s Diamond Jubilee Medal (2012) and most recently the BC Patient Safety and Quality Council’s Leadership in Advancing the Patient Voice Award (2017).
Sarah Crowe, Clinical Nurse Specialist
Sarah Crowe is a Clinical Nurse Specialist in Critical Care at Surrey Memorial Hospital. She is responsible for facilitating the translation of research evidence into direct patient care, developing guidelines to promote practice change, and supporting quality improvement work. She leads quality improvement work for care of the chronically critically ill.
Dr. Fuchsia Howard, Assistant Professor at the School of Nursing, UBC
Dr. Fuchsia Howard is an Assistant Professor at the School of Nursing at UBC. Dr. Howard is an investigator with an active research program examining the health service needs of cancer survivors, a population facing long-term outcomes and health service challenges which parallel those of ICU survivors. She has expertise in partnering with clinicians and decision makers to conduct qualitative, quantitative, and mixed-methods research.
Dr. Greg Haljan, Critical Care Physician, Department Head for ICU, Surrey Memorial Hospital
Dr. Greg Haljan is a Critical Care Physician and the Department Head for the ICU at Surrey Memorial Hospital. Dr. Haljan oversees the medical care of chronically critically ill patients in Fraser Health residential care. He has significant expertise in developing and implementing new evidence-informed models of care for critically ill patients, engagement of multidisciplinary health care team members, and has completed additional training in physician leadership and health economics at the UBC Sauder School of Business.
Adrianne Haynes, Patient Partner
Adrianne Haynes is a patient partner on the research team. Adrianne is a former certified nurse assistant who worked at Zion Park Manor in Cloverdale. She has also been a medical office assistant and medical transcriptionist in the past. Adrianne in her diverse background has also functioned as a volunteer Chaplin at Surrey Memorial Hospital. Adrianne had the honor to be able to advocate for her husband who passed away two years ago after suffering greatly in his last few years of life. She has developed a deep compassion to be a voice for those unable to speak for themselves and to help them navigate through the healthcare system. Adrianne is a tremendous asset to many different groups as a patient voice.
Joan Ford, Patient Partner
Joan Ford is a patient partner on the research team. Joan holds a master’s in education is retired from her career as an Educator, Program Coordinator and Change Facilitator. She is currently the primary caregiver for her husband through his journey with dementia and a cluster of other debilitating maladies. She has a deep compassion for those around her and has been able to provide insight to the experience of caregivers and their family members. Joan’s experience and perspective have been invaluable to the team.
Rableen Nagra, Patient Engagement Specialist, BC SUPPORT Unit Fraser Centre
Rableen Nagra, patient engagement specialist for BC SUPPORT Unit Fraser Centre combines her experience in non-profit management with a Masters in Health Care Leadership. With expertise in community and stakeholder engagement, and outreach, she is well positioned to engage patients and caregivers to implement the Strategy for Patient Oriented Research.
Magdalena Newman, Research Navigator Leader, BC SUPPORT Unit Fraser Centre
Magdalena Newman is a Research Navigator Leader with the BC SUPPORT Unit Fraser Centre. Previously, she worked for 8 years as the Research Development Specialist with the Fraser Health Authority. She obtained a Masters in Medical Microbiology from the University of Manitoba and received further research experience at the Universities of Calgary and British Columbia in the fields of molecular biology, stem cells, and bioinformatics. She has over 10 years of experience in substantive proposal review and development, the last 8 of which have been in the clinical field. Her responsibilities at the Fraser Centre include management of day-to-day operations and providing research consultations to clients in the field of Patient Oriented Research.